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FMS eNews 30/11/13

Hello all
It is with great sadness that I tell you of the death of Arthur, husband of Jeanne Hambleton.  Jeanne is chair of FMSSES (formerly FMSSAS) and works tirelessly for the fibromyalgia cause and search for a cure.  Sincere sympathy and condolences reach out to her.

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WORDz for the WEEK

 144.  Hiding yourself from the world doesn't exactly hide the world from you. 

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Fibromyalgia and Diet
Will changing your diet help you cope with fibromyalgia?

If you have fibromyalgia, you've probably wondered if there are ways you could modify your diet to improve symptoms such as fatigue and muscle pain.
Research hasn't shown that there are specific foods that all fibromyalgia patients should avoid or add to their diets. But it may still be worthwhile to take a closer look at how foods impact the way you feel.
"There aren't many good studies that have looked at how diet can affect fibromyalgia symptoms. But I think we can gather a lot from anecdotal evidence -- from what patients tell us," says Ginevra Liptan, MD, medical director of the Frida Center for Fibromyalgia in Portland, Ore., and author of Figuring Out Fibromyalgia: Current Science and the Most Effective Treatments.
Here are some of the ways doctors say food can play a role in fibromyalgia and tips on how you can tweak your diet to support your overall health.

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-the-diet-connection?ecd=wnl_fib_112613&ctr=wnl-fib-112613_ld-stry&mb=

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 Living with Chronic Pain: Discovering Gratitude

 It can be difficult to feel thankful when you live with chronic pain.  Because pain may interfere with important areas of life, you may have suffered some difficult losses. Over time, you may have become more resentful and less thankful.   But, if you take the time to notice, you may find that there are relationships, activities, and experiences to be grateful for, even though you have chronic pain. With practice, you can discover gratitude again and experience the many benefits of feeling thankful.

http://goalistics.com/2013/11/gratitude-well-being/?utm_source=Living+with+Chronic+Pain%3A+Discovering+Gratitude&utm_campaign=thanksgiving&utm_medium=email

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Chronic Pain Management Program

https://pain.goalistics.com/?utm_source=Living+with+Chronic+Pain%3A+Discovering+Gratitude&utm_campaign=thanksgiving&utm_medium

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 Positive Psychology 
 You don't have to pursue happiness. Make it come to you — starting today!
When was the last time you said, "I couldn't be happier..."? Happiness can be elusive. It can be fleeting. Too often, it can be lost in our modern world's swirl of stress, multitasking, and 24/7 news. Today you are already thinking about tomorrow.
Positive Psychology, a Special Health Report from Harvard Medical School, is a "how to" guide to greater personal happiness. It will show you how you can surmount the obstacles that disrupt and diminish your ability to enjoy life to its fullest, with awareness and connection.

http://view.mail.health.harvard.edu/?j=fe63177171640d7a7417&m=febb15747d630d7a&ls=fdc0157373650279701d707261&l=fe651576776607747416&s=fdf31576706505787c12717c&jb=ffcf14&ju=fe221777726c0c75741473&r=0

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 20 Surprising Ways to Prevent Colds and Flu

 From sleeping in to using vodka in place of hand sanitizer, check out the surprising stay-well secrets that real experts swear by.

Sniffle season strategies

You've got to act fast to fight off colds and flu. Case in point: University of Arizona scientists have found that when someone is sick in an office, it takes only four hours (!) for surfaces like coffeepot handles, copy-machine buttons and the fridge door to show traces of infectious virus. Considering that the 2012 flu season was one of the worst on record, it's well worth arming yourself against aches, cough, fever and general misery. For reality-tested tips that actually work, we turned to doctors, politicians, makeup artists and other brave souls who are exposed to viruses every day. Steal their strategies to win the war against germs this winter.

http://www.health.com/health/gallery/0,,20752945,00.html

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 So what is this initiative you speak of?

This is INITIATIVE!!!
In its simplest form it is thinking of and planning something, you can do in the form of a physical job or task and following this through to completion.
I'm not talking about grand plans that need grand rewards. There should never need to be any kind of self boost from helping someone. This isn't something you do and then plaster all over facebook to your friends, or blog about.

http://jesshopkins.blogspot.com.au/

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Sommer Larios Interview - Fibromyalgia


 Relationship Talk With Laura
It features a spoonie who opens up regarding her condition.





http://www.ustream.tv/recorded/39756088

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 Tai Chi/QiGong in Crawley, Horsham and Worthing

 Nicola's Note
Hello everyone, we have three more weeks of classes before we break for the Christmas holidays. I cannot believe we are at the end of the year already, it has gone so fast. I'm busy planning 2014 and there will be lots more training in store.  For full details on our class schedule, please view over the December calendar.  Wishing you all a very Merry Christmas and a Happy New Year. Regards, Nicola

http://earthbalance-taichi.com/news/class-venues/

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Daily Newsletter, Nov. 23rd, 2013

Daily Newsletter, Nov. 24th, 2013

Daily Newsletter, Nov. 26th, 2013

Daily Newsletter, Nov. 27th, 2013

Daily Newsletter, Nov. 28th, 2013

Daily Newsletter, Nov. 29th, 2013

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Yesterday I got my temporary prosthetic eye fitted at East Surrey Hospital, Redhill.  It gave me great pleasure to peel off the flower from my spectacle lens.  I can face the world again without embarrassing anyone! It's good to feel 'normal' again.

Best wishes to you all
Stella

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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. This blog commenced on 8th December 2012.

Posted by

FMS eNews 23/11/13

Hi
This has been a great family week.  We live with one of our daughters. The other one, who lives in Somerset, came to vist us and our son joined us on Wednesday.  We had not all been together for two and a half years, so it was a happy occasion.  I didn't think I would have time for FMS eNews, but I proved myself wrong, even if it was by burning the candle at both ends!
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WORDz for the WEEK

 143. Follow what you truly believe in; it will lead you to the 'gates' of your destiny.

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 Coping With Excessive Sleepiness
Natural Sleep Aids

 Jana Barber, a teacher in San Francisco, has had insomnia off and on for 20 years. She's learned to function on just a few hours a night, but sometimes, she says, lack of sleep catches up with her. "I get really ragged sometimes," she admits. "When you haven't slept, it's tough to keep your sense of humor -- and your patience -- and you need both when you work with kids."
What are the options for people like Barber, who don't want to take prescription sleep medications but crave a good night's sleep? WebMD consulted some sleep experts about "natural" sleep aids to learn more about how -- and how well -- they really work.

 http://www.webmd.com/sleep-disorders/excessive-sleepiness-10/sleep-supplements-herbs?ecd=wnl_slw_111713&ctr=wnl-slw-111713_ld-stry&mb=
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Will a Gadget Help You Sleep?
Sleep apps, alarm clocks, white noise machines, sleep monitors, and more.

 You can’t sleep, so you turn on the white noise machine, slip on an eye mask, and spritz some lavender spray into the air. Will you nab some shut-eye now? Maybe -- but maybe not. . . . . .
Many people look to gadgets to help them get their ZZZs, but fun as they might be, they’re no substitute for good sleep habits like going to bed at the same time every night, minimizing caffeine, and relaxing before bedtime.

 http://women.webmd.com/pharmacist-11/sleep-gadgets-apps-tips?ecd=wnl_slw_111413&ctr=wnl-slw-111413_ld-stry&mb=
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Putting an Overactive Bladder to Bed - Insights for Good Sleep and Good Sex

 After a long day, you’ve settled down for a comfortable night’s sleep. You’re just drifting off when suddenly you feel a warm wetness between your legs -- something you haven’t felt since you were about five years old. You’ve wet the bed.
For the approximately 16% of people over the age of 18 who have an overactive bladder (OAB), this kind of upsetting incident can become a regular occurrence. Even if they make it to the bathroom in time, they wake up so often to urinate that they aren’t getting a good night’s sleep.

 http://www.webmd.com/urinary-incontinence-oab/oab-13/sex-and-sleep?ecd=wnl_slw_111413&ctr=wnl-slw-111413_ld-stry_1&mb=
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Why the heck are you so tired???
 Our newsletter this week is packed with an enormous amount of value and I encourage you to spend some time and read each section. Even if the material does not directly pertain to your situation, please consider the other people in your life.
We are going to focus on the tie between the thyroid and adrenal glands. Most of you have heard me talk about adrenal function many times but for those that are not familiar please take note.
http://www.depkewellness.com/GlenDepke/Pages/Newsletters/November182013/index.cfm
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 Funding pressure is squeezing NHS hospitals into the arms of the private sector
Funding pressure is leading to cuts in beds and forcing NHS hospitals into the arms of the private
sector, according to recent figures. In mental health a 9% cut in the number of beds in special units is having a shocking impact upon patients. Mandy Peck, jumped to her death a day after being told that there were no beds available to ensure her safety. Other investigations by the BBC have shown how patients are being sectioned not because they need to be, but because it is the only way to get a bed. Across the NHS hospitals are now looking to the private health market for badly needed income, but at what cost to NHS patients?

 http://us2.campaign-archive1.com/?u=5f72f778439e38b1d18a28495&id=ca6e0ce0a5&e=49d061e6dd
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Heart of the Matter 
The Cholesterol Myth: Dietary Villains and Cholesterol Drug War.
Is the role of cholesterol in heart disease really one of the biggest myths in the history of medicine?
For the last four decades we’ve been told that saturated fat clogs our arteries and high cholesterol causes heart disease. It has spawned a multi-billion dollar drug and food industry of “cholesterol free” products promising to lower our cholesterol and decrease our risk of heart disease.
But what if it all isn’t true? What if it’s never been proven that saturated fat causes heart disease?
And what if the majority of patients taking cholesterol lowering drugs won’t benefit from taking these pills?
In a special two part edition of Catalyst, Dr Maryanne Demasi investigates the science behind the claims that saturated fat causes heart disease by raising cholesterol.

 http://www.abc.net.au/catalyst/heartofthematter/
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The Next Generation of Fibromyalgia Treatments – The Clinical Trials
With the FDA clamping down on a major class of opioid drugs used for pain relief by fibromyalgia patients, we’re taking a look at other alternatives.
We’re checking out ongoing or recruiting (or in some cases, recently completed) fibromyalgia clinical trials to see what the future may hold. There’s no telling how effective these treatments will be, but we do know some big bucks have been committed to see if these treatments work, and that says something. The trials are found in a clinical trials database run by the NIH called clinicaltrials.gov (which includes trials done outside the US, as well.)

 http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=18490&B1=EM112013F&utm_source=EM112013F&utm_medium=em&utm_campaign=FM
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 The Sunshine Vitamin - A Multitude of Health Benefits

 My name is Rich Carson, and I am the Founder and CEO of ProHealth, one of the nation's leading online nutritional supplement firms since 1988. I am very passionate about all of our products that will help you live better through a healthier life.
Ongoing research continues to reinforce the multitude of health benefits of vitamin D3. It primes the immune system to fight pathogens, and also acts as an immune system modulator to help put the brakes on out-of-control immune responses. It boosts calcium & phosphorus absorption for healthy bones and teeth, promotes healthy muscle function, and much more. An important vitamin D connection that has only recently begun to be recognized and emphasized is the link between low vitamin D and chronic pain, such as experienced by those with Fibromyalgia or Chronic Fatigue Syndrome.

 http://www.prohealth.com/ep/EP112213/index.cfm?slvor=11387.1129515.0.1.0.110434&eid
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Pleasure and pain brain signals disrupted in fibromyalgia patients
New research indicates that a disruption of brain signals for pleasure and pain contributes to increased pain sensitivity, known as hyperalgesia, in FM patients.
Results published in Arthritis & Rheumatism, a journal of the American College of Rheumatology, suggest that this altered brain processing might contribute to widespread pain and lack of response to opioid therapy in such patients.

 http://fibromodem.com/?p=11223

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 Chronic Pain Management and Activity Level: The Power of 10%

 If your back hurts, or you have tension headaches, facial pain, knee pain, migraine headaches, arthritis, or one of the many other chronic pain problems, you may find it difficult to stay active, much less to exercise.  Yet, an important part of coping and living with pain is being able to remain active, despite your pain. Reduced activity can create a vicious cycle leading to deconditioning: the less you do, the weaker your muscles will become, the more likely you will find activity to be tiresome and unpleasant, so you will do even less,  the weaker your muscles will become, and so on. This deconditioning cycle can lead to an increase in pain over time.

 http://goalistics.com/2013/11/chronic-pain-management-power-10/?utm_source=Chronic+Pain+Management+and+Activity+Level+-+The+Power+of+10%25+&utm_campaign=intimacy&utm_medium=email
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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Adrienne Dellwo
Universal acceptance by the medical community is one of the things we need most. See how one team of researchers is trying to get doctors to accept fibromyalgia as a concept and diagnosis, below.
Also this week, how to get through Thanksgiving without driving yourself into the ground, and why future drugs targeting neurotransmitters could have fewer side effects.
Down in Featured Articles, I've included information about overlapping conditions that are common in us.
Take care of yourself!


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Adrienne again . . .

How many times has some planned event left you wiped out for days or weeks? It can really help to build recovery time into your schedule. Learn more about why, below.
Also this week, some things healthy people need to know about the chronically ill, and the final results of my elimination diet.
Down in Featured Articles, you'll find information on treatment options.
Take care of yourself!


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Daily Newsletter, Nov. 16th, 2013

Daily Newsletter, Nov. 17th, 2013

Daily Newsletter, Nov. 18th, 2013

Daily Newsletter, Nov. 19th, 2013

Daily Newsletter, Nov. 20, 2013

Daily Newsletter, Nov. 21st, 2013

Daily Newsletter, Nov. 22st, 2013
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A post operative check-up visit to St Bart's yesterday indicated that all was well.
So, I end on an optimistic note.
Wishing you and your loved ones every joy and happiness.
Stella
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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.  I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.

Posted by

FMS eNews 16/11/13

Hello to all my readers
Another cold, frosty but sunny morning!  Very refreshing after a rather wet week.  Whatever the weather I remain at your service in the perpetual search for knowledge and information about our common enemy - fibromyalgia.  I remember once MANY years ago being told "Make friends with pain, then it won't hurt".  I thought that was mad at the time, but now I believe there may be some truth in it. 'Acceptance of'' perhaps rather than 'friends with' does create a sense of relaxation rather than the tenseness of opposition and fighting.  Embrace your pain.

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WORDz for the WEEK

 142.  The moment you stop blaming yourself for your istakes will be the moment you shall stop improving yourself.

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What Are You Affirming to Yourself?

 There have been many experiments that show that people's strength and their ability to cope with pain or discomfort are directly affected by what they are thinking about. People are constantly thinking and our bodies react to these thoughts -so in my opinion it is best to think empowering thoughts.
Affirmations are positive statements that describe a desired situation, and which are repeated many times, in order to trigger the unconscious mind into action to achieve a positive outcome.

Read more >>
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/Forget_Fibro-13.11.16.pdf

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FMSSES Newsletter

  This is not a typo error!  FMSSAS has changed its name.

 Read all about it here
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMSSES_Newsletter-13.11.16.pdf

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Folly Pogs Fibromyalgia Conference 2014
 Plans are well underway for the next and fifth fibromyalgia conference which is due to take place from Thursday 27th to Monday 31st March 2014. Click on TO BOOK FOR CONFERENCE on the black bar at the top of the webpage to access all the relevant documents.

http://fibromyalgiaconference.weebly.com/index.html

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THE NEXT GENERATION OF FIBROMYALGIA TREATMENTS – THE CLINICAL TRIALS

 (With more restrictions on pain drugs, new options for FM and ME/CFS are needed]
With the FDA clamping down on a major class of opioid drugs used for pain relief by fibromyalgia patients, we’re taking a look at other alternatives. pills With more restrictions on pain drugs, new options for FM and ME/CFS are needed In the first of a two blog series, we’re checking out ongoing or recruiting (or in some cases, recently completed) fibromyalgia clinical trials to see what the future may hold. There’s no telling how effective these treatments will be, but we do know some big bucks have been committed to see if these treatments work, and that says something. The trials are found in a clinical trials database run by the NIH called clinicaltrials.gov (which includes trials done outside the US , as well. )

Read more: http://www.cortjohnson.org/blog/2013/11/11/next-generation-fibromyalgia-treatments-clinical-trials/
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Complex Regional Pain Syndrome and Spreading neuroinflammation and autoimmunity – a model for ME/CFS and fibromyalgia?
 Complex Regional Pain Syndrome 1 (CRPS) (previously known as Reflex Sympathetic Dystrophy or RSD) is a relatively rare but possibly under-diagnosed condition which has been recognized for some 150 years. (It was included by the eminent and influential 19th century neurologist Charcot in the ‘hysteria minor‘ group of disorders.)  Some consider CRPS and fibromyalgia as close cousins, while others seem to want to put some clear blue water between the two based on the more intense pain experienced by CRPS patients (clocking in at a whopping 42 out of 50 on the McGill Pain Scale 2). Regardless, there’s extensive symptom overlap between the two disorders 3 and, by extension, with ME/CFS.

http://www.cortjohnson.org/blog/2013/11/09/chronic-regional-pain-syndrome-fibromyalgia-mecfs-spreading-neuroinflammation-model/
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Chronic Fatigue Syndrome and Fibromyalgia Practitioner Review Program Requests Beta Testers 
 Finding a good practitioner is hard – and so is avoiding a bad one. We’re mostly running blind as we go from one practitioner to the other, hoping that one of them is going to know something about chronic fatigue syndrome and/or fibromyalgia. Please help us create a ME/CFS/FM practitioner review program... Please help us create a ME/CFS/FM practitioner review program… We want to cut out the guesswork, save you precious time and money and give you the best chance to improve your health.

Read more: http://www.cortjohnson.org/blog/2013/11/08/chronic-fatigue-syndrome-fibromyalgia-practitioner-review-program-requests-testers/

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10 Things to Hate About Sleep Loss

 You know lack of sleep can make you grumpy and foggy. You may not know what it can do to your sex life, memory, health, looks, and even ability to lose weight. Here are 10 surprising -- and serious -- effects of sleep loss.

http://www.webmd.com/sleep-disorders/excessive-sleepiness-10/10-results-sleep-loss?ecd=wnl_slw_110713&ctr=wnl-slw-110713_ld-stry&mb=

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From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
 Our brains are just built differently. Get a look at the many irregularities researchers are discovering and why they may contribute to your pain, below.
Also this week, tests I think doctors should do for all of us, and the sugar hangover - do you get it?
Down in Featured Articles, some help around the house, so you can do more with fewer symptoms.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/305277fd0700010acb0025dc.htm

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 Best and Worst Foods for Sleep
  From early birds to night owls, we all can agree that when we finally lay our heads on the pillow we’d like to actually go to sleep, thank you.
Nothing is more annoying than insomnia, and the evidence is piling up that sleep is essential for good health. Although the research is a bit spotty when it comes to which foods help or harm sleep, anecdotal evidence does suggest that certain items consumed right before bedtime are more likely to be “sleep promoters” while others may be “sleep stealers,” says Russell Rosenberg, Ph.D., CEO of the National Sleep Foundation.
Here’s a list of potential good guys and bad guys when it comes to getting some shut-eye.

http://www.health.com/health/gallery/0,,20628881,00.html

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Message from FMA UK

 Pam has received the following request from a journalist, looking to do an article on fibromyalgia.  If anyone is interested in assisting please contact Pam Stewart directly on pam.stewart@fmauk.org with a contact telephone number so Pam can have a talk with them before passing their details on.
Thanks.
Dear Pam,
I'm a freelance journalist. My mum suffered from fibromyalgia so it is something I've always been interested in. I've been commissioned by the Sunday Express's S Magazine to write a piece about the condition. They've asked me to find a case study so a woman in her 40s who suffers and would be happy to be interviewed and photographed. The interview would be conducted over the phone and would probably take about half an hour.
Please let me know if you can help. My deadline isn't urgent but would be good to get in the bag in the next few weeks.
I look forward to hearing from you.
Many thanks,
all the best,

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Daily Newsletter, Nov. 11th, 2013

Daily Newsletter, Nov. 12th, 2013

Daily Newsletter, Nov. 13th, 2013

Daily Newsletter, Nov. 14th, 2013

Daily Newsletter, Nov. 15th, 2013

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With friendly fibro hugs - may they be beneficial to you
Stella

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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional. I alo include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee.
This blog commenced on 8th December 2012.

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FMS eNews 09/11/13


Hi there
It looks like we're back in business!  I've managed a "normal" eNews this week.  My eye is getting used to working solo. 
  
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 WORDz for the WEEK

 141.  If you haven't got the strength, desire or ability to do the right thing for the right reason, then perhaps it is better that you not do it all.
(I wonder if this should have said "then perhaps it is better that you do not do it at all".)

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JAMES BOND MURDER MYSTERY

 Love and Let Die Fun Dinner Party

 Chichester Park hotel on Friday November 22nd 2013

 In Aid of Fibromyalgia Research

 Read all about it 
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/13.11.22_JAMES_BOND_MURDER_MYSTERY.doc

 Booking Form
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/13.11.22_Booking_form_Murder_MYSTERY.doc

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Two Studies requiring volunteers

 1.  The Brain in Pain Study
Dr Julius Bourke Principal Investigator for The Brain in Pain Study at Barts and The London School of Medicine is conducting research into how the nerves and the brain feel and detect pain, how they respond to pain, which parts of the brain are involved and which chemicals are used by the brain to communicate between these areas.
People with fibromyalgia and healthy controls are needed.  The research involves quite lengthy appointments but I am assured that breaks can be taken as necessary.
Please read the attached information and consider taking part in this important research.  Contact Dr Bourke directly to register your interest.  This research cannot happen without your help. If you live within reasonable travelling distance of London you maylike to take part.

 Full information is available at : http://goo.gl/Iq0C3J

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2.  Fibromyalgia and Pregnancy study
This research aims to explore the links between fibromyalgia and pregnancy, and we need participants to share their lived experiences in relation to this topic.

 https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMS_%20%26_Pregnancy_Study.doc

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S. Bucks Fibromyalgia and ME/CFS Support Group

 November Newsletter

 Think of your body like a diamond!
https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/South_Bucks_Newsletter_13.11.pdf

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Cranial Electrical Stimulation (CES) for Fibromyalgia by Dr Kevin White

Dr Kevin White
 I recently was contacted by Linda Horncastle, an Occupational Therapist
who lives and works in the United Kingdom. She wanted to know my opinions regarding the use of cranial electrical stimulation (CES) for the treatment of fibromyalgia. My first response was wise and confident: I told her I hadn't even heard of it. But then, not wanting to come across as more of an idiot than I already seemed, I told her I would look into it and get back to her.  So here I am, getting back to her (and you) regarding my thoughts on CES, having done some reading about it.  [CES]
http://thefibrofog.blogspot.ca/

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 From Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome
Adrienne Dellwo
Does a new study mean a lab test for fibromyalgia is finally on its way? See why this test is promising, but why you shouldn't rush out to get the test, below.
Also this week, a growing case for autoimmunity in chronic fatigue syndrome; and why some experts think fibromyalgia is a spectrum disorder, like autism.
Down in Featured Articles, get lots of information on improving your daily life.
Take care of yourself!

 http://specials.about.com/service/newsletters/chronicfatigue/30526ec28700017a320025db.htm
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Pregabalin Significantly Improves Fibromyalgia Pain in Patients Who Also Suffer From Depression 

 Pregabalin is approved for the treatment of fibromyalgia in the United States, Japan, and other countries. But, because prior pregabalin/fibromyalgia studies excluded the use of antidepressants in treatment, information about the effectiveness and safety of pregabalin for the treatment of pain in people with fibromyalgia who are being treated with antidepressants for their depression is lacking. 

 http://www.newswise.com/articles/pregabalin-significantly-improves-fibromyalgia-pain-in-patients-who-also-suffer-from-depression

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Monthly Prescribing Reference

Lyrica Successfully Reduces Fibromyalgia Pain

 Pfizer announced top-line results from two Phase 3b studies with Lyrica (pregabalin) capsules in patients with fibromyalgia and painful diabetic peripheral neuropathy (DPN).

 http://www.empr.com/lyrica-successfully-reduces-fibromyalgia-pain/article/316886/
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Fibromyalgia Might Be Harder on Younger Patients, Study Finds

 Research compared symptom severity, quality of life in various age groups October 26, 2013 
Young and middle-aged fibromyalgia patients report worse symptoms and poorer quality of life than older patients, a new study reveals.

 http://health.usnews.com/health-news/news/articles/2013/10/26/fibromyalgia-might-be-harder-on-younger-patients-study-finds
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 Celiac disease patients prone to develop fibromyalgia

 While patients with celiac disease had more than a 10% chance of developing fibromyalgia, patients with fibromyalgia had the same prevalence of celiac disease as the general population, according to recent study results.

 http://www.healio.com/rheumatology/fibromyalgia/news/online/%7Bb2cabc52-3228-4a5b-aa7d-1ec64c65a2ad%7D/celiac-disease-patients-prone-to-develop-fibromyalgia
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Fibromyalgia solved; A pathology, not in the mind
The National Biotechnology Information Center (NBIC) of the National Institutes of Health (NIH) recently released the findings of research funded by grants from Eli Lilly Pharmaceuticals and Forest Laboratories that claim to have discovered a causative pathology (the science of cause and effect)  for fibromyalgia.
The cause of the disease escaped researchers for years. In fact, the condition was considered by many in the field of medicine as psychosomatic (in the mind) because of the variety of symptoms that could not be clinically pinned down and patient reporting was the primary criteria.

 Read more: http://communities.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/oct/17/fibromyalgia-solved-pathology-not-mind/#ixzz2k4Ac0CZ6

 Follow us: @wtcommunities on Twitter
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Thyroid's Connection to Fibromyalgia

 Dr. Stephen Langer explains how nutritional imbalances and low thyroid produce symptoms similar to that of fibromyalgia. 
More at www.ihealthtube.com
Are you getting enough calcium, magnesium and vitamin D?

 http://www.youtube.com/watch?feature=player_embedded&v=qof1vy4kp7g
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Weekly Review, Nov. 2nd, 2013

Weekly Review, Nov. 3rd, 2013

Weekly Review, Nov. 4th, 2013

Daily Newsletter, Nov. 7th, 2013

Daily Newsletter, Nov. 8th, 2013

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A cold and frosty mornng and - at last - leaves falling from trees.  Late autumn, early winter?  Confused?  FM is also one of those things that is unpredictable, and inconsistent.  I hope eNews helps you unravel some of the incongruities.  
Love yourselves and love life
Stella

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N.B. I would like to point out to you that the information in my eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.
I previously sent out emails as FMSSAS eNews. Past issues of FMSSAS eNews can be found at www.fms-sas.co.uk/fmseNews.html  and on a blog at http://fmssas-enews.blogspot.com These ceased at the end of November 2012 when I resigned as a trustee. 
This blog commenced on 8th December 2012.

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