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FMS eNews 30/08/14

The Sutton Fibromyalgia Pop In Club are holding a stall at Asda, Sutton on 14th September, with challenges!  Any other plans for Fibroyalgia Awareness week besides  this and Horsham's which I outlined last week?  Let me know.

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WORDz for the WEEK

183.  Before giving a piece of your mind make sure you have enough to spare.



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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome


The suicide of Robin Williams has thrown a spotlight on not only the tragedy of suicide, but depression and chronic illness, as well. See what we need to learn, and get resources for helping you and your loved ones identify the signs of a serious problem.
That's below.
Also this week, a look at being a parent when these illnesses sap your ability to ... well, do much of anything. Plus, remember those format changes I've talked about? They're about to become a reality for this page, so I've include the guide to them again to refresh your memory. I know how confusing it can be when something no longer looks familiar!
Down in Featured Articles, I've focused on things that can make your life better, bit by bit, because it's the sum total of the steps we take that define our journey.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/3053f25b920001827c0031a9.htm


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The ‘Insulted Midbrain’ in Chronic Fatigue Syndrome 


Recently Dr. Lucinda Bateman proposed that neuroinflammation in the middle part of the brain could explain many, if not all, of the symptoms found in Chronic Fatigue Syndrome. With that intriguing hypothesis in mind we take a look back at a fascinating MRI study by Dr. Leighton Barnden of the Department of Nuclear Medicine, The Queen Elizabeth Hospital, Adelaide, that came to a similar conclusion two years ago.

http://www.cortjohnson.org/blog/2014/08/22/insulted-midbrain-chronic-fatigue-syndrome-glial-cells/


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From Mono To Giardia To Orthostatic Intolerance to … Chronic Fatigue Syndrome and Dr. Cheney: the First Visit 

My ME/CFS History
1989 – The First Flu-like Illness
I was always a high energy burn the candle at both ends type-A person. In my early twenties (1989) I came down with a flu-like illness that did not go away. I had gone from a person who would play sports 4-6 hours a day, to one who would get worn out walking around the block. The doctors said I had mono or Epstein-Barr Virus (EBV), but the condition did not resolve.

Read more: http://www.cortjohnson.org/blog/2014/05/22/mono-giardia-orthostatic-intolerance-chronic-fatigue-syndrome-visit-dr-cheney-1/


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The Cheney Chronicles #2: His Protocol For Chronic Fatigue Syndrome 


I have a confession to make -  I am treating myself.
I just finished listening/reading Dr. Horowitz’s book, “Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease” in which he discusses MSIDS – Multiple Systemic Infectious Disease Syndrome.  I learned from that book that we all deserve a doctor that tries to diagnose our health problems and who wants to reduce his patients suffering.  I learned some various other things from his book that could also be useful, especially if you suspect you have Lyme disease.
My current host of doctors include Dr. Rey, who is a member of Dr. Klimas’ clinic at Nova Southeastern University, and Dr. Paul Cheney. I feel they are very narrowly focused. Therefore, I am trying to treat myself making use of each of their different perspectives in the hopes that the combination of treatments will prove to be the catalyst that reduces and preferably eliminates my relentless fatigue.

Read more: http://www.cortjohnson.org/blog/2014/08/25/cheney-chronicles-protocol-chronic-fatigue-syndrome/


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FM HealthWatch
Where Fibromyalgia and Chronic Fatigue Syndrome Part Ways (and Where They Don't) 

Fibromyalgia and ME/CFS have many similarities but they also have some distinct differences. Learn what the research teaches us about where they shake hands and where they go their separate ways.

Read More » 

And other articles: http://www.prohealth.com/em/EM082714F/index.cfm?slvor=12005.1165677.0.1.0.110434


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What You Should Know About Fibro 


Pain, tenderness, and fatigue are just a few of its possible symptoms. Find out how your brain and nerves may play a role.
Watch Video › 

   • With Exercise, Take It Slowly
  • Tips to Find a Fibro Specialist
  • Why Gut Bacteria Matter

http://view.messages.webmd.com/?j=fec8107577630478&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6e157075&ju=fe9313717c650c7d77&r=0


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Do You Have Insomnia? 


How do you tell if you're simply having a few rough nights, or if you have a bigger sleep problem? Find out.
Read Article ›

  • Natural Sleep Aids
  • What to Do After a Bad Night's Sleep
  • 11 Tips to Help You Sleep Better Tonight  
 
 http://view.messages.webmd.com/?j=febb107570600d74&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6b167077&ju=fe9313727461077f7d&r=0


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How many marbles do YOU have? 
An easy fun way for children to understand the physical limitations of someone with CFIDS and Fibromyalgia using marbles and a jar.


I have written a children's book to help them understand the physical limitations of someone with Chronic Fatigue Syndrome and Fibromyalgia.. I've written a fun story but give a practical fun analogy that anyone can use.   The cool thing is the analogy would work well for other chronic illnesses such as rheumatoid arthritis, pulomary disease and other physically limiting conditions.  I plan on using Xlibris which is listed as one of the top 10 self publishing companies.. I have a contract ready and waiting and all I need are the funds to proceed with the publishing.. The publishing package includes illustration, marketing, registering the book with the federal government, obtaining a Unique Identifier number.  This book is necessary and will help children and families with CFS and Fibromyalgia.  I have already had friends who have CFS and or Fibro read it to their children and many of them have already assembled the jar and marbles.  It's so much fun for the kids and the adults..

https://www.kickstarter.com/projects/821169266/how-many-marbles-do-you-have


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FM Joe's Election Campaign


Joe Neilson, Independent Parliamentaary candidate for Brighton Kemptown visited the newly opened Brighton TV Studios.  He met a girl working there who has had ME since she was seven.
Photo 1. 
Photo 2. 

Joe has had an article published in The Fibromyalgia Magazine.
Page from magazine. 
Article about Joe.


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List of FMSSES Trustees & Group Leaders

If you are looking for a FM Support group in SE England, look here:


https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMSSES%20_Contacts_14.08.pdf



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A personal  note from Vicky
It wasn't meant to be!

For those who haven't  seen me in the past week you'll know that I was unsuccessful in my bid to take part in the next series of 'The Island'.  Many of you thought I was crazy to even contemplate it and maybe I was.  It was though an interesting experience to go through the selection for a reality TV show.  Lots of us there, were interested in seeing how far we could push ourselves but of course the television company had  another agenda.  They want a diverse range of people, the more extreme the better judging from the people from my group that went through to the next round. I enjoyed the last series and will certainly watch the next series with extra interest.

Read more:- http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=3d68378090&e=2a0fc40be9
Also included:
Education: How to be happy.
Video of the week: The Diamond Press
Success Story: Doreen Coughlin


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GMI Daily Newsletter: 8/22/14

GMI Daily Newsletter: 8/23/14

GMI Daily Newsletter: 8/24/14

GMI Daily Newsletter: 8/25/14 

GMI Daily Newsletter: 8/26/14

GMI Daily Newsletter: 8/27/14

GMI Daily Newsletter: 8/28/14

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Yesterday I returned to St Barts for a review on my eye situation.
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

FMS eNews 23/08/14

September heralds the UK's Fibromyalgia Awareness Week.  Are you or your support group doing anything to mark the occasion?  If so, do let me know.  FMSSES is also interested in your activities as outlined in their Newsletter below.  My group in Horsham is having two events, both organised by Alan & Jackie Bull.  They have both had 'noughty' birthdays recently.



They are celebrating with a fundraising Birthday Party on 7th.  Tickets are sold out, so if you haven't got one you can't go!!  
They have also organised an awareness stall at Newbridges Nurseries, from 10-4 on 14th which will also hopefully raise some funds for fibromyalgia research.  All moneys raised from both events will go towards the FMAUK's research programme.


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WORDz for the WEEK

182.  The best way to prepare for life is to begin living it. . .


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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

Have you noticed a change in your feelings toward your romantic partner since starting a new medication? What about your sex life? Get a look at what a new study reveals, and how the impact may depend on your gender. That's below.
Also this week, the agony I went through before getting a new diagnosis, plus some back-to-school and other seasonal content, both up top and down in Featured Articles.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/3b53e921c70001ea0d0031a6.htm


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The Folic Acid Controversy, MTHFR and Chronic Fatigue Syndrome 


In the 1990’s, the US and UK mandated the enrichment of all grain products with folic acid in hopes of reducing the occurrence of neural tube defects. In the decades since neural tube defects have indeed declined yet little long term research has been done to determine the effects excess folate might have on non-pregnant adults.
The tolerable upper limit (TUL) for folate is set at 1,000 mcg/day for adults, but with the overconsumption of fortified grain products many may exceed this threshold. Recent studies are now taking a closer look at potential health risks of folic acid fortification for adults.
Folate is not only a concern for adults, but may have particular relevance for some people with Chronic Fatigue Syndrome (ME/CFS).

http://www.cortjohnson.org/blog/2014/08/12/folic-acid-controversy-mthfr-chronic-fatigue-syndrome/


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Models Suggesting Chronic Fatigue Syndrome Is “Amenable to Intervention” Provide Hope: Dr. Broderick Talks 
Chronic Illness … er, “Impaired Homeostatic State”
“Illnesses such as these continue to defy a conventional one-piece-at-a-time approach.”


Broderick believes chronic illnesses such as ME/CFS and FM, autoimmune illnesses, diabetes, etc. involve a kind of ‘homeostatic reset’ that enables the body to survive but also includes a kind of ‘stuckness’.  Chronic illnesses, in other words, are chronic for a reason. If Broderick’s right, it’s possible that every chronic illness reflects a homeostatic state that is resistant to change.
Will modeling clear up the maze that is ME/CFS?
With the computational power and methods available now, it’s not just about NK cells or T-cells — it’s about how NK and T-cells and B-cells and hormones all work together to produce a disease.  You still need the data on NK cell problems because that informs the model but the big picture is coming from the computational end.  In fact Broderick would argue you will never understand a complex disease like ME/CFS unless you look at it in it’s entirety – and that means modeling it.

Read more: http://www.cortjohnson.org/blog/2014/08/13/models-suggest-chronic-fatigue-syndrome-amenable-intervention-dr-broderick-talks/


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Tracking Your Sleep For Better Health in Fibromyalgia and Chronic Fatigue Syndrome 
Validation at the Doctor’s Office


For me, using my Google Android FibroMapp app to provide sleep report to my GP was the start of a whole new relationship with my doctor.  When she saw that on average I was up 14’xs a night (and that my pain levels were at at least 8, not to mention my major brain fog, perception issues and more) she started to take my experiences very seriously.
The first thing was to try medications to help me sleep.   I can, hand on heart, say that I pretty much tried everything – OTC, Rx and herbal/supplements.  By using my Health Rising FibroMapp to track my sleep experiences I could tell exactly what was – and wasn’t helping.  (In fact NONE of the above helped!).

Read more: http://www.cortjohnson.org/blog/2014/08/13/models-suggest-chronic-fatigue-syndrome-amenable-intervention-dr-broderick-talks/


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The Fibromyalgia Mimics – When Your Pain is Not Due to FM:  How Stress Becomes Real Pain #3 


As we continue our series on Dr. Martinez-Lavin’s book “Fibromyalgia: How Stress Becomes Real Pain”, he  takes us on a tour of pain and fatigue disorders that look like Fibromyalgia and are often misdiagnosed in people with FM (or vice versa).
Being given heavy duty immune suppressants or undergoing  surgery to  no avail is not a happy thing, particularly when you’re already suffering. This list will hopefully alert people to the pitfalls of misdiagnosis in disorders like FM and ME/CFS.

Read on: http://www.cortjohnson.org/blog/2014/08/18/fibromyalgia-mimics-pain-due-fm-stress-becomes-real-pain-3/


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Epigenetics Study Highlights Immune Issues in Chronic Fatigue Syndrome 
Will the Real Immune Issue Please Step Forward?


Immune-SystemPatrick O. McGowan, PhD, is an assistant professor in the Department of Biological Sciences, University of Toronto at Scarborough. He starts off his paper by listing the array of immune problems found in ME/CFS – some of which seem almost at odds with each other.  There’s the proclivity towards Th2 (anti-inflammatory) dominance, but pro-inflammatory findings are also found. There’s natural killer cell dysfunction found in the innate immune response but there’s also the cytotoxic T-cell findings in the adaptive immune response.

Read on: http://www.cortjohnson.org/blog/2014/08/20/epigenetics-study-highlights-immune-issues-chronic-fatigue-syndrome/


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Start Your Fibro Fitness Plan 


If you haven't exercised in a while, getting started can be tough. Ease into your new workout routine one step at a time.
Read Article › 

  • What Are Fibromyalgia's Tender Points?
  • Common Misdiagnoses of Fibromyalgia
  • How Tai Chi Can Help Your Joints 

http://view.messages.webmd.com/?j=febf107470670c75&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6e157075&ju=fe9413717466037b76&r=0


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Simple Tips for Healthy Joints 


You may have less pain if you keep your joints strong and flexible. Try some of these easy ideas to help avoid injuries and soothe aches.
View Slideshow ›

  • 7 Signs of Painkiller Addiction
  • Migraine Food Triggers
  • Pain Meds: A Pharmacist Answers Your Questions  

http://view.messages.webmd.com/?j=febf10747d630575&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff69177076&ju=fe931371766d017f74&r=0


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Curcumin Made 65X More Bioavailable - Modern Take on a "Golden" Spice Busts Brain Fog, Joint and Body Pain


Have you had a "Fibro Fog" day lately? Hazy focus, slow thinking and spotty memory can be frustrating when you're trying to take care of business. What about a "joint and body pain" day? Morning stiffness, creaky flexibility and muscle aches make it hard to get up and go.
Of course, for fibromyalgia and CFS/ME sufferers, on the worst days these brain and body complaints combine - diminishing work performance, day-to-day activities and overall quality of life.
Turmeric, a legendary "Golden Spice," may help. Used for thousands of  years in both Ayurvedic and Traditional Chinese health systems, turmeric's active compound, curcumin, has been shown in scientific research to have multiple biological activities that may sharpen mental performance while soothing away muscle aches and joint discomfort.
More promising still, new technologies have made curcumin 65X more bioavailable, while novel combinations with other time-tested botanicals appear to achieve powerful synergistic effects. These formulations may bring new hope for fibromyalgia and CFS/ME sufferers seeking natural relief from brain, joint and body concerns. 

http://www.prohealth.com/ep/EP081514/index.cfm


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New Look.  New Feature.  Same Community.


We updated the health tracker and added a new feature: Labs and Metrics. You can now keep a record of blood test results, hours of sleep, number of steps taken, or anything else with a number associated with it. The format is simple, just name the metric and then add in the values and units. Your results will be displayed in the same easy-to-use graph format as symptoms and treatments so that you can see changes over time.

https://madmimi.com/p/a3be25?fe=1&pact=24522137291


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Great news for Fibroduck fans!
Our exciting new phone App is coming very soon

Hello Fibroduck fans,
 We're very excited to tell you that the new Fibroduck phone app is currently under construction and should be with us in around six weeks maximum. 
The Fibroduck phone app will work across ALL platforms, and will include a message board so that users can talk to each other from within the app itself, along with many other useful features. 
 You'll love our new handy App and once we've raised enough money to put on the research, we'll expand the app so that researchers can track those taking part. 
 We'll keep you guys updated as to the release date 
 More details to follow
Thanks for reading

http://us8.campaign-archive2.com/?u=d3db286ab44a6d0375795c4e3&id=aa37d28590&e=8012b6322b


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Feet on the Ground 
Harness powerful physical and mental benefits by going barefoot. 


Michael Sandler was in-line skating when a child stepped into his path. Swerving to miss the toddler, he crashed into the concrete—breaking his hip and arm, and shattering his left femur.
“Coming back from that injury, I was told I might lose my leg and wouldn’t be able to run again,” he says.  He ended up with a titanium femur and a significant leg-length discrepancy.  When nothing else in his rehab worked, he tried something radical in its simplicity: he took off his shoes. Today, Sandler credits going barefoot with reducing his inflammation and swelling, and helping him to regain a sense of balance.
Sandler, the author of Barefoot Walking and Barefoot Running, says the experience changed how he thinks about his feet—not as weak things we need to coddle, fit with orthotics and inject with steroids. Instead, he suggests we should all let our feet do what they are physiologically designed to do.

See more at: http://spiritualityhealth.com/articles/feet-ground


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How Magnetism Affects How We Think and Feel 
Alteration of magnetic fields can change the behavior of everything from individual neurons to overall behavior...and even how humans are connected to each other.


How can anyone not love magnets? They’re about as close as we can get to magic, with their ability to move things around invisibly and defy gravity by picking up nails right off the floor. And how about the North Pole, which manages to make a tiny compass needle thousands of miles away point toward it?
Physicists long ago determined that electromagnetism—which is responsible for interactions between charged particles—is one of the key forces in the universe. Now neuroscientists are expanding our knowledge of the effects of magnetism on humans and how its manipulation can diagnose mental disorders and alter the ways we think and behave.

See more at: http://spiritualityhealth.com/articles/how-magnetism-affects-how-we-think-and-feel


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Do You Experience Chronic Fatigue?


It’s not uncommon to experience occasional tiredness, especially if you have had a restless night, have been sick, or have engaged in heavy physical labor. However, if you feel tired all the time despite your best efforts to get enough sleep, you may be experiencing chronic fatigue.
Chronic fatigue syndrome (CFS) is a disorder characterized by a persistent feeling of tiredness that is not relieved by rest and lasts for a period of at least six months. CFS goes beyond just feeling tired; it causes individuals to feel so run down that they find it difficult – and, at times, impossible – to function and engage in daily activities.

Read on: http://optimalwellnesslabs.com/do-you-experience-chronic-fatigue


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Newsletter No. 7
Your story for FM Awareness Week


On page 4 of this edition is information about UK Fibromyalgia Syndrome Awareness Week which takes place in early September. This is such a good opportunity for local support groups or individuals to build on national publicity by organising a something locally to increase awareness.
We asked you to tell us your plans for events which we in turn can publicise on the website.
Very important.
Equally important, we are keen to generate as much publicity as possible afterwards by reporting on events which took place, both on the website and in the newsletter.
So, what will be your story? Email your plans for an event to chair@fms-sas.co.uk and editor@fms-sas.co.uk for immediate publicity on the website. Please tell us as soon as possible for maximum exposure and in any case no later than Thursday 28 August.

Read the rest of the newsletter: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/FMSSES_Newsletter-14.08.pdf

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A personal  note from Vicky


I've had a busy week! 
As a lot of you know I went on a day 10 cleanse recently and lost weight while eating well and felt fantastic.  So inspired with this that I was invited to undergo some additional nutritional training via daily a webinar. It's all about optimal nutrition that is nutrition at cellular level. There are obese people who are actually suffering from (type B) malnutrition. It's all sobering stuff.  

Read more: http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=d246bea826&e=2a0fc40be9

Also:
Education: HIIT Workouts
Video of the week: Pilates Exercise: The Criss Cross
Success Story: Rosie Christie


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GMI Daily Newsletter: 8/16/14

GMI Daily Newsletter: 8/19/14 

GMI Daily Newsletter: 8/20/14 

GMI Daily Newsletter: 8/21/14 

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What more is there to say?  I just hope some of the above will help you to achieve some improvements to your health.  Keep hoping!
Fibro hugz
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources. Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com and you will be added to the emailing list.

FMS eNews 16/08/14

Those of you who are knitters, please get going on the mini hats for this year's innocents drinks' Christmas project to aid AgeUK.  Last year I knitted over 300, and have done quite a lot towards this years effort.
Completed hats can be handed in at your local AgeUK Centre or Shop.
The hats don't have to be complicated like the one on the left.  They can be simple like the one on the right!  Or anything in between.

See the leaflet: https://dl.dropboxusercontent.com/u/17459523/FMS_eNews/The_Big_Knit_2014.pdf

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WORDz for the WEEK

181. Life's hopes, dreams and memories merge together, creating a beautiful mural.  A beautiful mural of God's handiwork!!

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From  Adrienne Dellwo, your Guide to Fibromyalgia & Chronic Fatigue Syndrome

A lot of us are overweight. We know that. Most of us probably figure we'd feel better if we lost some weight, and some research has backed that up. But now, a brand new study takes another look at how weight effects us. See what it has to say, below.
Also this week, a look at the Chinese exercise/meditation activity qigong and what research shows about it for both FMS and ME/CFS.
Down in Featured Articles, you'll find a lot of information on some of the pain conditions that are common in us.
Take care of yourself!

http://specials.about.com/service/newsletters/chronicfatigue/3053dfe68b00014519003175.htm

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Orthostatic Intolerance, Pain and the Mitochondria in Chronic Fatigue Syndrome: Dr. Newton Talks 
Highlights from Dr. Newton’s Video on Blood Flow

“I would suggest that abnormalities of the autonomic nervous system are the underpinning phenomena that explain most if not all of the symptoms that people with ME experience.” Dr. Julia Newton
Orthostatic Intolerance
Dr. Julia Newton started off a section on orthostatic intolerance(OI) stating that 90% of patients with ME/CFS experience dizziness or lightheadedness. She diagnoses OI using a symptom questionnaire (Orthostatic Grading Scale >4 = OI).

http://www.cortjohnson.org/blog/2014/08/06/orthostatic-intolerance-pain-mitochondria-chronic-fatigue-syndrome-dr-newton-talks/

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Where Fibromyalgia and Chronic Fatigue Syndrome Part Ways (and Where They Don’t) 

Lately we’ve seen what appears to be a great deal of similarity in muscle issues in Chronic Fatigue Syndrome and Fibromyalgia. We know that Dr. Bateman and others believe ME/CFS and Fibromyalgia occur on a fatigue-pain continuum – that they are similar disorders that differ in the amount of fatigue and pain present. They both predominantly affect women, and similar  medications are used in both.
Both Dr. Natelson and the Lights, however, have found differences in ME/CFS + FM vs ME/CFS patients alone, and Natelson argues that they’re quite different disorders.
Now a recent study demonstrates an important way that this is so.

http://www.cortjohnson.org/blog/2014/08/08/fibromyalgia-chronic-fatigue-syndrome-part-ways/

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Telomeres, Wandering Minds, and Creating Cellular Health: the Last Best Cure V 
“The good news is that we are not our thoughts.” – Clifford Saron, PhD, Center for Mind and Brain, UC Davis

People with Chronic Fatigue Syndrome and Fibromyalgia are advised to cut down the amount of ruminating they’re doing.   But according to a large Harvard  study, most of us – whether we’re healthy or ill – spend an extraordinary amount of time engaged in thinking about things other than what we’re doing.  We’re not ‘being here now’;  we’re either thinking about something that happened earlier, or thinking ahead to the future, or we’re judging and assessing what’s before us.   Our minds are darting around and around – here, there, and everywhere.

http://www.cortjohnson.org/blog/2014/08/10/telomeres-wandering-minds-creating-cellular-health-last-best-cure-iii/

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Herbs and Supplements for Fibromyalgia 

Many herbal products and natural supplements claim to ease fibromyalgia pain or fatigue. Get the facts before you give them a try.
Read Article › 

  • Lidocaine Injection May Help Fibro Pain
  • How Can Physical Therapy Help?
  • Finding a Fibromyalgia Specialist  

 http://view.messages.webmd.com/?j=febf10737c6d027c&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff8d1d79&ju=fe8d13707667037a72&r=0

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Easy Exercises to Help Ease Your Pain

Exercise can help fatigue, increase energy, and improve sleep and mood. Try these simple moves you can do every day.
View Slideshow › 

  • Simple Tricks for Avoiding Everyday Pain
  • Painkillers, Narcotic Abuse, and Addiction
  • How Hypnosis May Help Relieve Pain  

http://view.messages.webmd.com/?j=fec510747462007a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff68177071&ju=fe9213707063017f76&r=0

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Fend Off Fatigue for Good 

If you're always complaining of exhaustion, it's time to take steps to get to the root of the problem. 
View Slideshow › 

  • Do You Snore?
  • Causes of Sleepwalking
  • Stop Grinding Your Teeth  

http://view.messages.webmd.com/?j=fec410747462017a&m=fe9f13707564027c77&ls=fe591c767367047c7d12&l=ff921178&s=fe5c1679766306787412&jb=ff6b167077&ju=fe89137070630d7870&r=0

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2 Explosive Realisations About the Suffering with MECFS and Fibromyalgia

The pain was suddenly so severe, that I screamed, “Call an ambulance!” I was writhing in agony. What happened next was an explosive realisation – more about that in a moment.
But first, let me tell you, that after around 7 years of illness, I have been recovered for several years now. So long, that it is starting to truly feel like a thing of the past and the rawness of the experience, the suffering with Fibromyalgia and ME/CFS has somewhat worn off. In fact, I had to look up the dates to realise that it is 4 years now that I have been recovered.
We often feel frustrated that others don’t realise the depth of our suffering with ME/CFS and Fibromyalgia. In fact, many people get so stuck in this frustration that they never move beyond this towards recovery.

See more at: http://cfsunravelled.com/2-explosive-realisations-about-the-suffering-with-mecfs-and-fibromyalgia-2/

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Her Emotional Healing Allowed the Final Slide into Full Fibromyalgia Recovery  
Beth’s Fibromyalgia Recovery Story – 15 Years 

Recovered After 10 Years of Fibromyalgia.  It’s been over to 15 years since I have been free of the symptoms of Fibromyalgia. If you have told me that was possible in the earlier years of my diagnosis, I wouldn’t have believed you. Today, I share my story to let others know that recovery from Fibromyalgia is possible and additionally, that recovery doesn’t mean just surviving, but thriving! Here is my story of healing through a variety of strategies and my final fibromyalgia breakthrough from emotional healing on an energetic level.

See more at: http://cfsunravelled.com/emotional-healing-to-slide-into-full-fibromyalgia-recovery/

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Chronic Fatigue Syndrome Recovery Stories & Fibromyalgia Recovery Stories

See more at: http://cfsunravelled.com/cfs-fibro-recovery-stories/

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Three Symptoms of Fibromyalgia That Magnesium Could Alleviate

According to recent estimates, nearly 80% of Americans suffer from magnesium deficiency.  That’s a startling percentage for any country, let alone the United States.  You may be asking yourself, “Why does it matter?”  You may be surprised to learn that many of the symptoms of magnesium deficiency are similar to fibromyalgia symptoms.  Consequently, many of the symptoms of your  Fibromyalgia could be eased if in fact you are deficient and you take decisive steps to address the deficiency.
To be clear, magnesium deficiency is not likely to be the sole cause of your fibromyalgia – nor should addressing the deficiency be considered as the sole treatment.  You may be surprised, however, at the relief you may find from many of your symptoms after addressing the deficiency.  So lets take a look at three symptoms shared by both magnesium deficiency and fibromyalgia and learn how addressing the deficiency can provide relief.
  • Symptom #1:  Tenderness & Pain
  • Symptom #2: Fatigue & Weakness
  • Symptom #3:  Confusion & Cognitive Impairment

Read more: http://fibromyalgiatreatmentgroup.com/fibromyalgiatreatment/three-symptoms-of-fibromyalgia-that-magnesium-could-alleviate

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Premier Biomedical Drug Feldetrex For Neuropathic Pain, Fibromyalgia Gains Key Patent Award

Premier Biomedical, Inc. has received approval from the United States Patent Office for their proprietary medication “Feldetrex,” a drug designed to relieve the symptoms of neuropathic pain and fibromyalgia.  The William Beaumont Army Medical Center Principal Investigator is now drafting a protocol in order to conduct a double-blind, placebo-controlled comparison of this medication and the leading FDA-approved regimen for these concerns, which will be submitted for IRB approval shortly.

http://sacfs.asn.au/news/2014/07/07_04_new_drug_feldetrex_for_neuropathic_pain_and_fibromyalgia_gains_key_patent_award.htm

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Newsletter August 14th 2014

Welcome to this week's newsletter.  This week we are pleased to share the recording of the second Secrets to Recovery LIVE, broadcast on 28th July.  This session included a summary of our patient survey, an inspirational interview with James Sawyer, and Helen Lynam (Director of Nutrition) talking about Postural Orthostatic Tachycardia Syndrome (POTS) and ME/CFS.

http://us5.campaign-archive2.com/?u=fcdfb32950f88900216774c4e&id=080651b0bd&e=6252891a01

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Pledge your support

Help us to make our voice heard in Westminster and in Brussels; please sign our petition against excessive EU restrictions on vitamin and mineral supplements.
“We the undersigned urge the European Commission and the Governments of the Member States of the European Union to implement the provisions of the Food Supplements Directive (2002/46/EC) in such a way as to ensure that consumers have access to as wide a range as possible of safe, popular and effective higher potency vitamin and mineral supplements; with provision for individual Member States to permit onto their own national market products at higher potencies than the limits set by the Union if they consider it appropriate to local circumstances.”

https://www.consumersforhealthchoice.com/save-our-supplements/pledge-your-support/

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A personal  note from Vicky

Our competition winner Jackie Bull (left) who has introduced her sister in law Brenda to our classes.
Thank you to all those who took part in our competition, I appreciate your efforts.  Jackie has won free classes for the whole of August.
Happy Birthday to Jackie’s husband Alan, who also comes to class as he is having a ‘noughty’ birthday this month.

Also:
Education: How HIIT works
Video of the week: Pilates Exercise Video of The week: Single And Double Leg Stretch
Success Story: Linda Hurrell

http://us4.campaign-archive1.com/?u=1f0fb2b9eada51a6fa54509ba&id=5db6fae613&e=2a0fc40be9

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Hello everyone,  We will soon welcome in the autumn term, hoorah. I always enjoy teaching in September, as students return from the holidays with a new found gusto! Across West Sussex, there is one course for new beginners, where we will start the Chen short form from the beginning on Mondays at 7.30pm in Horsham.  There are lots of ways to study Tai Chi and Qigong with us, feel free to contact me prior to making a start. You can view over the September 2014 calendar here. Thanks for reading and happy training, regards, Nicola.


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GMI Daily Newsletter: 8/13/14

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I had an eye test this week with the optician who first suspected my eye problem last year.  It was good to see her again and I shall be eternally grateful to her for detecting the problem before the cancer had time to spread to other parts of my body.  I am pleased to say that my good eye is still good and does not have any further problems.  I don't even need new spectacles!
Good wishes to all
Stella
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N.B. I would like to point out to you that the information in my FMS eNews blog is passed on to you mainly from other sources.  Links are given to the original articles. I take no responsibility for their accuracy but freely give them publicity if I think they might be of interest to my readership. Sites I refer you to are for information only. They might conflict in their opinions, they might not even be medically sound, but I merely offer them for you to peruse and make your own judgements, accept or reject as you will. Only by reading widely can we get an overall picture of fibromyalgia syndrome and how we can deal with its symptoms, learn to cope with them and still have a life. Any advice or recommendation of a medical or legal nature should always be discussed with a qualified professional.
I also include various awareness items, benefits issues, as well as general health considerations. Anyone wishing to reproduce any of the included items in printed form should seek permission from the originators.
Wordz for the Week are from ‘Wordz for the Day’ by Donnie Kuhn, Sr. who died in May 2011.
This eNews is my personal offering to fibromyalgia sufferers and their carers and is not related to any other organisation or charity.
If you don’t already get reminders when each new FMS eNews is posted, please send an email to fmsstella@gmail.com  and you will be added to the emailing list.